ABSTRACT
Background: Persons with dementia (PWD) and their caregivers are uniquely impacted by the COVID-19 pandemic, including higher risk of mortality for PWD. Objectives: To describe the context and circumstances of deaths of PWD within a dementia support program during the COVID-19 pandemic. Design: Retrospective data collection of PWD deaths between March 1, 2020 and February 28, 2021. Setting/Subjects: Decedents enrolled in Care Ecosystem, a multidisciplinary team model for dementia care at University of California San Francisco, Ochsner Health, and UCHealth. Measurements: Using mixed methods, we analyzed data using descriptive measures and team-based thematic analysis to understand the end-of-life (EOL) experience of PWD-caregiver dyads. Results: Twenty-nine PWD died across three sites. Almost half (45%) were between ages 70-79 and 12 (41%) were women. Eighteen (62%) died at a private residence; two died in the hospital. Hospice was involved for 22 (76%) patients. There were known causes of death for 15 (53%) patients. Only two deaths were directly related to COVID-19 infection. Social isolation was perceived to have a high or very high impact for 12 (41%) decedents. Four qualitative themes were identified: (1) isolation due to the pandemic, (2) changes in use of dementia supports and resources, (3) impact on goals of care decisions, and (4) communication challenges for EOL care coordination. Conclusion: Among PWD and caregivers enrolled in a dementia support program, the COVID-19 pandemic had direct and indirect influences on mortality and EOL experiences of PWD. Caregivers' experiences of caring, decision making, and bereavement were also affected.
ABSTRACT
The purpose of this study was to explore the caregiving experience of Chinese American family caregivers of persons with dementia with a focus on challenges and coping strategies. Using a qualitative study design, we conducted semi-structured interviews with 26 Chinese American family caregivers and analyzed the data using thematic analysis. We also identified their caregiving experience specific to the COVID-19 pandemic. First, four themes were discovered: (1) filial obligations, (2) preference for utilizing home- and community-based supports, (3) relying on primary care doctors, and (4) helping behaviors. Two additional COVID-19-related themes were identified: (1) social isolation and (2) perceived discrimination. We suggested interventions at the individual, community, and societal level not only to support various challenges experienced by this ethnic group but also to promote their coping strategies.
ABSTRACT
The research team developed a community-based, intergenerational intervention, the Spanish-language Healthy Buddy Program to alleviate transportation barriers experienced by Latinx older adults. College students were paired with Latinx older adults and helped them identify transportation- and health-related resources in their communities. During COVID-19, the program was implemented in Hillsborough County, Florida, and Dallas-Fort Worth Metroplex and San Antonio, Texas. This paper reports the study process and outcomes using quantitative and qualitative data collected in Texas (n = 25). Individual interviews indicated older adult participants were receptive to the program model and appreciated the roles student buddies played to help improve their mobility. (PsycInfo Database Record (c) 2022 APA, all rights reserved)
ABSTRACT
The Caring Callers Program was developed as a telephone-based intervention utilizing Senior Companion volunteers to reach older adults at greater risk for loneliness during the COVID-19 pandemic. This pilot program consisted of trained volunteers who provided supportive, weekly calls as well as community resources with their Caring Callers clients. The purpose of this study was to qualitatively explore the experiences of Senior Companion volunteers in the Caring Callers Program through the lens of productive aging. We completed semi-structured interviews with 18 Caring Callers volunteers. We used Rapid and Rigorous Qualitative Date Analysis (RADaR) which yielded four themes: (1) reciprocity; (2) purposeful use of time; (3) learning new skills; and (4) gaining perspective. Our findings provide insight for gerontological researchers examining volunteering as a productive aging activity and offer strategies for designing peer-led, telephone-based interventions to promote social connectedness in an unprecedented time.
ABSTRACT
The research team developed a community-based, intergenerational intervention, the Spanish-language Healthy Buddy Program to alleviate transportation barriers experienced by Latinx older adults. College students were paired with Latinx older adults and helped them identify transportation- and health-related resources in their communities. During COVID-19, the program was implemented in Hillsborough County, Florida, and Dallas-Fort Worth Metroplex and San Antonio, Texas. This paper reports the study process and outcomes using quantitative and qualitative data collected in Texas (n = 25). Individual interviews indicated older adult participants were receptive to the program model and appreciated the roles student buddies played to help improve their mobility. (PsycInfo Database Record (c) 2022 APA, all rights reserved)
ABSTRACT
To address the need for collaborative approaches to managing dementia in primary care, we implemented the Living with Dementia (LWD) program in a geriatric primary care clinic. This study evaluated the impact of short (≤6 months) and longer-term (7+ months) participation in LWD on care partner outcomes (i.e., self-efficacy, depression, and burden) using t-tests and examined dementia support topics discussed with care partners through the intervention using deductive content analysis. Across 20 months analyzed, 57 dyads participated in the LWD program. Short and longer-term LWD participation indicated a significant increase in self-efficacy with small effect sizes; no changes were observed in depression or burden. Dementia support topics most frequently discussed with care partners focused on care partner well-being, behavior management, and offering referrals. This early evaluation suggests a collaborative care program integrated into primary care can address needs related to caring for persons with dementia and may improve care partner self-efficacy.
ABSTRACT
During the COVID-19 pandemic, older adults experienced great levels of social isolation and feelings of loneliness. We developed a telephone reassurance program, Caring Callers, to provide a weekly phone call to socially isolated older adults. Dyads were created which comprised of a Senior Companion volunteer and a homebound older adult. Using a mixed methods approach, we examined the program's impact on homebound older adults. The participants were satisfied with the program and showed a significant increase in overall health. They discussed social and emotional benefits of the program and other benefits that they gained from community resources. Due to the vulnerability of the participants, this telephone-based intervention seemed feasible without technological barriers. It is critical that aging service providers recognize the resourcefulness and relatability of older adult volunteers and utilize them to continue to support socially isolated older adults during an unprecedented event affecting people's isolation.
Subject(s)
COVID-19 , Aged , Humans , Loneliness , Pandemics , SARS-CoV-2 , TelephoneABSTRACT
The purpose of this study was to examine the experience of Senior Companions with telephone reassurance program training delivered via Zoom and the feasibility of using teleconferencing as a platform for training older adult volunteers during the COVID-19 pandemic. Volunteers were recruited from a local Senior Companion Program. We assessed training enrollment and participation rates. We also examined the overall participant experience with the program training by asking structured/semi-structured questions and analyzed the data using content analysis. The average age of the volunteers was 72.5 (n=20). During the first recruitment, 39 Senior Companions expressed their interest in the program. As a result, 20 out of 39 volunteers (51.3%) successfully completed the teleconference training (18 joined over the phone & 2 joined online). Findings from this pilot study suggest that the teleconferencing training was feasible for older adult volunteers and the volunteers discussed that the program training would benefit and support their volunteer roles. The findings of this study provide insight for gerontological researchers and educators related to potential strategies for completing research and training in the midst of COVID-19. The use of teleconferencing training that incorporates best practices for older adults’ learning may offer promise for the potential scalability and sustainability of volunteer trainings during and after COVID-19.